Publication year: 2019
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This book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes.It include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations.
Subject: Medicine, Health Policy, Social Policy, Philosophy of Technology, Biomedical Big Data, Data Philanthropy, GDPR Health Care, GDPR Medicine, Medical Data Donation, Medical Data Ethics, Medical Data Sharing, Philosophy of Information, Privacy Health Care, Privacy Medicine